Academy of Nutrition and Dietetics

Contact: 800-877-1600
Population served: Anyone in need of nutritional information
Other language(s): Spanish
Mission:

The world's largest organization of food and nutrition professionals is committed to improving the nation's health and advancing the profession of dietetics through research, education and advocacy.

• Provides reliable and evidence-based nutrition information for the public
• Website offers search feature to find a registered dietician by location or expertise

Acute Leukemia Advocates Network (ALAN)

Contact: Website
Population served: Healthcare professionals, patient advocates
Mission:

To change the outcomes of acute leukemia patients by strengthening patient advocacy.

• ALAN is an independent global network of patient organizations which aims to increase awareness about the acute leukemias, share best practices, advocate for better access and treatment, and improve education for healthcare professionals.

Alex’s Lemonade Stand Foundation (ALSF)

Contact: 610-649-3034 or 866-333-1213
Population served: Children with cancer and their families, caregivers, young adults, healthcare professionals and researchers related to childhood cancer
Mission:

To change the lives of children with cancer through funding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer.

• Travel For Care Program offers financial assistance to eligible families for travel for childhood cancer treatment at medical institutions in the U.S. and Canada.  Patient must be diagnosed by age 18 and be under 21 and in active oncology treatment following a relapse, or enrolling in or currently participating in a clinical trial for active oncology treatment or a treatment innovation not available at their local institution. Applications must be submitted by a social worker or medical representative. 
• Childhood Cancer Treatment Journal is a free treatment organizer for families of childhood cancer to help parents keep track of important treatment information.
• Ambassadors Program involves family members and friends of a childhood cancer hero who choose to get more involved with ALSF.
• My Childhood Cancer: Survey Series aims to better understand how childhood cancer affects families.
• SuperSibs Programs aim to comfort, encourage and empower siblings during their family’s battle against childhood cancer.
• Offers a free guide for education professionals to help patients, their siblings, and classmates cope with a diagnosis or death in their school community.

Alliance for Fertility Preservation

Contact: 925-290-8950
Population served: Cancer patients, survivors, health care professionals
Mission:

To increase information, resources and access to fertility preservation for cancer patients and for the healthcare professionals who treat them.

• Website provides information about fertility preservation, costs, and financial resources.  Includes podcasts and videos.
• Advocates to raise awareness for patients to be fully informed about their options as well as the ability to access these options.

American Association of Sexuality Educators, Counselors and Therapists (...

Contact: 202-449-1099
Population served: Patients and health professionals
Mission:

AASECT is a not-for-profit, interdisciplinary professional organization of individuals who share an interest in promoting understanding of human sexuality and healthy sexual behavior. In addition to sexuality educators, sexuality counselors and sex therapists, AASECT members include physicians, nurses, social workers, psychologists, allied health professionals, clergy members, lawyers, sociologists, marriage and family counselors and therapists, family planning specialists and researchers, as well as students in relevant professional disciplines.

• Website offers a search feature to locate a therapist, counselor or educator by country or state.

American Psychosocial Oncology Society (APOS)

Contact: 615-432-0090
Population served: Oncology professionals in the U.S.
Mission:

To bring together professionals working in the psychological, behavioral and social aspects of cancer.

American Society for Radiation Oncology (ASTRO)

Contact: 800-962-7876
Population served: Health professionals
Mission:

To improve patient care through education, clinical practice, advancement of science and advocacy.

• Provides members with the continuing medical education, health policy analysis, patient information resources and advocacy that they need to succeed in today’s ever-changing health care delivery system.

American Society for Reproductive Medicine (ASRM)

Contact: 205-978-5000
Population served: Patients, caregivers and health professionals in the U.S.
Other language(s): Spanish
Mission:

ASRM is a multidisciplinary organization dedicated to the advancement of the art, science and practice of reproductive medicine. The Society accomplishes its mission through the pursuit of excellence in education and research and through advocacy on behalf of patients, physicians, and affiliated health care providers.

• Provides educational materials on infertility, menopause, contraception, reproductive surgery, endometriosis, and other reproductive disorders
• Offers Find a Health Professional Search tool via the website.

American Society of Clinical Oncology/Cancer.Net

Contact: 888-651-3038
Population served: People diagnosed with cancer, caregivers, and professionals in the U.S.
Other language(s): Spanish
Mission:

To bring the expertise and resources of the American Society of Clinical Oncology (ASCO) to people living with cancer and those who care for and care about them.

• Cancer.net website provides patient-focused information produced by ASCO
• Offers a toll-free helpline to people with cancer, their caregivers, family members, and friends to assist them in finding resources that may assist in their search for information.

American Society of Hematology (ASH)

Contact: 202-776-0544
Population served: Patients, caregivers and health professionals concerned with blood disorders, worldwide
Mission:

To further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.

• Provides information about blood basics, blood disorders, and clinical trials (through collaboration with LLS)
• Offers Find A Hematologist search tool for US residents to find hematologists who accept new patients, perform case reviews, or provide second opinions
• Lists websites of patient groups with information about blood diseases
• Provides hematology education, meetings, and publications for clinicians and scientists.

Amyloidosis Research Consortium

Contact: 617-467-5170
Population served: Individuals diagnosed with amyloidosis, caregivers, health professionals
Mission:

To accelerate the development of advanced diagnostic tools and effective treatments for systemic amyloidosis.

• Provides disease information, publications and videos
• Free Amyloidosis Clinical Resources app
• Online Clinical Trial Finder Tool
• Advocates on public policy issues related to amyloidosis

Association of Community Cancer Centers (ACCC)

Contact: 301-984-9496
Population served: Patients, caregivers and health professionals in the US
Mission:

To be the leading education and advocacy organization for the cancer care community.

• ACCC consists of a network of 25,000 multidisciplinary practitioners from 2,100 hospitals and practices nationwide. As advances in cancer screening and diagnosis, treatment options, and care delivery models continue to evolve, ACCC adapts its resources to meet the changing needs of the entire oncology care team.
• Assists patients and caregivers with locating a local cancer center with the Find an ACCC Cancer Program Member search tool on the website.

Association of Pediatric Hematology/Oncology Nurses (APHON)

Contact: 855-202-9760
Population served: Registered nurses, as well as allied health care practitioners who work in the field including child life specialists, social workers, and pastoral care providers, in the U.S., Canada and around the world
Other language(s): Spanish
Mission:

To support and advance nurses and their practice in order to optimize outcomes for children, adolescents, and young adults with cancer and blood disorders and their families.

• Mentoring Program links APHON members in their mutual pursuit of higher goals in the areas of: leadership, professional/career development, role integration, pursuit of higher education, research, nursing teaching/education, clinical development and project development
• Offers opportunities to earn continuing nursing education credits online
• Holds conferences several times a year.

Association of Oncology Social Work

Contact: 847-686-2233
Population served: Patients, caregivers, health professionals
Mission:

To advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through: networking ,education , advocacy, research, and resource development; AOSW envisions a global society in which oncology care meets the physical, emotional, social and spiritual needs of all people affected by cancer.

• Provides tips for managing cancer and caregiving
• Sets standards of practice for oncology social workers.

Cancer and Careers

Contact: Website or 646-929-8032
Population served: People affected by the diagnosis of cancer, their caregivers and health providers in the U.S.
Other language(s): Spanish
Mission:

To empower and educate people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events; to eliminate fear and uncertainty for working people with cancer.

• Offers a comprehensive website with information on a variety of work-related issues
• Free printed publications
• Career coaching
• Support groups and educational seminars for employees with cancer, their healthcare providers and co-workers
• Online comprehensive materials for healthcare professionals
• Resume review available online with career coaches
• Legal and career teleconferences
• In-Service Trainings for Health Care Providers (presented in conjunction with Triage Cancer)

Cancer Financial Assistance Coalition (CFAC)

Contact: Website only
Population served: People diagnosed with a cancer in the U.S.
Mission:

A coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges.

• Facilitates communication and collaboration among member organizations
• Provides information via the website regarding existing resources and linking to other organizations that can disseminate information about the collective resources of the member organizations
• Advocates on behalf of cancer patients who continue to bear financial burdens associated with the costs of cancer treatment and care.

Center for International Blood and Marrow Transplant Research (CIBMTR)

Contact: 414-805-0700
Population served: Anyone seeking information on stem cell transplant research
Mission:

To collaborate with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide; is a combined research program of the National Marrow Donor Program® and the Medical College of Wisconsin.

• Conducts research studies to advance understanding and outcomes of hematopoietic cell transplantation
• Collects and maintains outcomes data on every allogeneic transplantation performed in the U.S. This database now contains information on more than 330,000 transplant recipients
• Provides access to outcomes data and research repository samples
• Provides statistical expertise to researchers
• Provides education, guidelines and training

Center to Advance Palliative Care

Contact: 212-201-2670
Population served: Health professionals serving patients with life-threatening illness
Mission:

To increase the availability of quality palliative care services for all people living with serious illness.

• Provides health professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings

Children’s Leukemia Research Association (CLRA)

Contact: 516-222-1944
Population served: Children and adults with leukemia in the U.S., healthcare professionals and researchers
Mission:

To support research efforts towards finding the causes and cure for leukemia.

• Patient Aid Program offers limited funds (up to $3,000 per year) to assist with certain treatments, services and prescriptions; funds are available on a first-come, first-serve basis
• Matching Dollar Program matches up to $3,000 in donations raised by the applicant, family or friends during a specific time period
• CLRA funds grants to doctors conducting promising research about leukemia.

CLL Global Research Foundation

Contact: Website only
Population served: Patients and health professionals interested in CLL information
Mission:

To abolish chronic lymphocytic leukemia (CLL) as a threat to the life and health of patients.

• Aims to fund patient-oriented projects with rapid clinical applications and to expand the knowledge of CLL on a global scale
• Provided seed money for the formation of two CLL Research Consortiums, one in Australia and one in Israel.

CML Advocates Network

Contact: Website only
Population served: People diagnosed with chronic myeloid leukemia (CML), worldwide
Other language(s): Spanish and French. European Leukemia Net Treatment Guidelines available in Chinese, English, French, German, Hebrew, Hungarian, Italian, Macedonian, Polish, Serbian, and Spanish
Mission:

To facilitate and support best practice-sharing between patient group organizers across the world.

• Informal online organization designed, published and moderated by CML patients and carers who are registered patient group advocates and organizers.
• Provides a worldwide web directory of CML patient groups, to allow patient groups to find national support groups in another country
• Provides a platform of communication for CML patient advocates
• Builds a knowledge base in the form of a Wiki (like Wikipedia, but dedicated to CML patient advocacy)
• Provides an area where educational material is ready for download to patient advocates.

Cutaneous Lymphoma Foundation

Contact: 248-644-9014
Population served: Anyone seeking information on cutaneous lymphoma (CL)
Mission:

To support every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research.

• Provides education and support to patients diagnosed with CL
• Information on website is designed to help physicians, nurses and other health professionals access resources related to cutaneous lymphoma.

Hairy Cell Leukemia Foundation

Contact: 224-355-7201
Population served: Patients, caregivers, health professionals, researchers
Other language(s): Spanish, French
Mission:

To improve outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as by providing educational resources and comfort to all those affected by hairy cell leukemia.

• Provides information about hairy cell leukemia, referrals to health care centers and clinical trials
• Organizes annual seminars bringing patients, clinicians and researchers together to learn from each other about the latest advancements in diagnosis and treatment
• Offers an annual research grants program for medical professionals.

International Association for Hospice & Palliative Care (IAHPC)

Contact: 866-374-2472
Population served: Palliative care and hospice workers
Mission:

To collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.

• Works with individuals and organizations in developing multiple strategies targeted to raise awareness among the affiliates of the civil society and decision makers so that palliative care is provided and available to those individuals in need, to increase access and availability to analgesics and other medications, to increase the provision of services by adequately trained professionals and caregivers.

Lymphoma Foundation of America

Contact: 734-222-1100
Population served: Lymphoma patients, caregivers, healthcare professionals
Mission:

To help lymphoma patients and families, and to fund research for a cure.

• Registered nurses provide medical information and resources
• Provides online list of lymphoma specialists in the US
• Online survivor stories and lists of recommended books
• Funds research grants and awards to scientists at leading universities and cancer centers.

MPN Advocacy and Education International

Contact: 517-899-6889
Population served: Patients with myeloproliferative neoplasms (Essential Thrombocythemia, Idiopathic Myelofibrosis, Polycythemia Vera), caregivers, professionals worldwide
Other language(s): All European, Spanish, Arabic, Japanese, Urdu
Mission:

To make a difference in the lives of those affected by myeloproliferative neoplasms.

• Offers disease, treatment and clinical trial information
• Website lists online and in-person support groups worldwide
• Offers an email digest, educational events and webcasts
• Provides outreach to the entire MPN community to grow awareness, understanding, and a better quality of life for MPN patients

• Engages legislators and governmental bodies on behalf of their constituents to ensure the MPN Community is represented.

Multiple Myeloma Research Foundation

Contact: 203-229-0464
Population served: Patients with myeloma, caregivers, professionals, researchers
Mission:

To pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure.

• Provides disease and treatment information including clinical trials
• Offers patient and professional educational programs and publications
• Funds multiple myeloma research.

National Academy of Elder Law Attorneys (NAELA)

Contact: 703-942-5711
Population served: Elderly, people with disabilities, and their families, attorneys
Mission:

To improve the quality of legal services provided to people as they age and people with special needs; the primary focus is education. (NAELA does not provide direct legal services.)

• Provides online search tool to find an Elder Law or Special Needs attorney
• Sponsors continuing legal education programs on Elder and Special Needs Law for attorneys
• Provides publications and educational materials to its members on a wide range topics
• Provides support to other organizations serving people as they age and people with disabilities
• Advocates on public policy issues facing seniors and people with special needs.

National Association of Social Workers (NASW)

Contact: 202-408-8600
Population served: Professional social workers
Mission:

To enhance the professional growth and development of its members, to create and maintain professional standards, and to advance sound social policies.

National Cancer Institute's Cancer Information Service

Contact: 800-422-6237
Population served: Cancer patients, caregivers, family, friends, healthcare providers, researchers
Other language(s): Spanish
Mission:

To provide accurate, up-to-date, and reliable information on cancer that is easy to understand; this free service is a federally funded cancer education program.

• Offers trained information specialists who can answer cancer-related questions on a range of cancer topics (but is not a substitute for medical advice).

National Center for Complementary and Integrative Health (NCCIH)

Contact: 888-644-6226
Population served: People in the U.S. seeking scientific information on complementary health approaches
Other language(s): Spanish
Mission:

To define, through rigorous scientific investigation, the usefulness and safety of complementary and integrative health interventions and their roles in improving health and health care.

• Responds to inquiries via phone or email, and retrieves information from Federal databases of peer-reviewed scientific and medical literature
• Distributes NCCIH publications and selected other federal publications on complementary health approaches
• Makes referrals to other federal resources as appropriate.

National Comprehensive Cancer Network (NCCN)

Contact: 215-690-0300; 866-788-6226 for educational events
Population served: Patients, caregivers, health professionals
Mission:

To improve the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

• Alliance of leading cancer centers
• NCCN Guidelines provide comprehensive and frequently updated clinical practice guidelines
• NCCN Guidelines for Patients® translate the information that doctors use to help patients and families understand treatment options
• Offers educational programs and webinars
• Articles and videos give advice on how to help a loved one with cancer and take care of oneself.
• Incorporates treatment guidelines and limited recommendations for surveillance and management of common issues facing survivors.

National LGBT Cancer Network

Contact: 212-675-2633 or Website
Population served: Cancer patients, survivors, caregivers, healthcare professionals in the US
Mission:

To improve the lives of LGBT cancer survivors and those at risk by educating the LGBT community about increased cancer risks and the importance of screening and early detection; training health care providers to offer more culturally-competent, safe and welcoming care; and advocating for LGBT survivors in mainstream cancer organizations, the media and research.

• Resource library contains up-to-date research articles, webinars, videos, fact sheets, etc.
• Maintains directories of LGBT-welcoming cancer screening facilities and cancer treatment facilities in the US
• Provides LGBT cultural competency trainings for health and human service providers.

Oncology Nursing Society (ONS)

Contact: 866-257-4667
Population served: Nurses and health professionals worldwide
Mission:

To promote excellence in oncology nursing and quality cancer care.

• ONS is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing
• Educational programs are provided in a variety of formats, including national conferences, regional workshops, online education, and print-based offerings
• Website offers the latest oncology news, online education opportunities, clinical practice and research information, career center, and legislative action information.

Pablove Foundation

Contact: 323-657-5557
Population served: Kids with cancer
Other language(s): Spanish
Mission:

To fund pediatric cancer research and advances in treatment, educate and empower cancer families, and improve the quality of life for children living with cancer through hospital play, music and arts programs.

• Childhood Cancer Research Grant- awards minimum two research grants $50,000.00 each to fund senior postdoctoral fellows/junior faculty (M.D. or Ph.D.) or to provide seed money to established investigators for innovative basic, translational, clinical, and epidemiological research directed to pediatric and adolescent cancer.
• Pablove Shutterbugs- teaches children living with cancer to develop their creative voice through the art of photography.

Rally Foundation

Contact: 404-847-1270
Population served: Children with any type of cancer and their families, supporters, researchers
Mission:

To empower volunteers across the country to raise awareness and funds for childhood cancer research, to find better treatments with fewer long-term side effects and, ultimately, cures.

• Become a Rally Researcher- Supports research projects affiliated with Children's Oncology Group or supported by the National Institute of Health and the National Cancer Institute. Awards one year research grants through a rigorous competitive peer review process.
• Rally Family Emergency Fund- Offers financial assistance for children under age 21 in current cancer treatment. Fund has an annual cap of $500 and a lifetime cap of $750. Funds may be used to cover a patient's cancer-related medical bills or other family costs related to treatment, e.g. transitional housing.
• Become a Rally Kid- Personal stories of cancer patients and survivors, which are inspirational and encourage everyone to Rally in our efforts to raise awareness and funds for childhood cancer research.
• Rally Athlete Training Team- Provides independent athletes with personalized fundraising pages and the opportunity to run for a Rally Kid.

St. Jude International Outreach Program

Contact: 901-595-2349
Population served: pediatric blood cancer patients, their caregivers, and healthcare providers specializing in pediatric catastrophic diseases worldwide
Mission:

To improve the survival rates of children with catastrophic illnesses worldwide, through the transfer of knowledge, technology and organizational skills.

• Program develops partnerships with medical institutions and fund-raising organizations to facilitate the involvement of other agencies and organizations to support key programs and the education of local personnel.
• Sharing knowledge and technology with the local governments, healthcare providers, and the private sector to increase the survival rates of children all across the globe.
• Pediatric specialty committed to caring for and supporting children with cancer regardless of the family’s financial or healthcare resources.
• Clinical trials designed to provide the best available care while answering important research questions.
• Hosts visiting fellows at its campus in Memphis, Tennessee.
• Partner sites in various countries. Please see the website for more details on locations.

The Lauri Strauss Leukemia Foundation

Contact: 516-767-1418 or 516-767-1414
Population served: Health professionals and clinical researchers
Mission:

To find a cure for leukemia, lymphoma, Hodgkin disease, myeloma and allied cancers by means of awarding Discovery Grants to innovative developmental research projects; to conduct marrow donor drives.

The Myelodysplastic Syndromes (MDS) Foundation, Inc.

Contact: 800-637-0839 or 609-298-1035
Population served: Patients with MDS, caregivers, health professionals worldwide
Other language(s): Spanish, French, German, Danish
Mission:

A multi-disciplinary, international organization devoted to MDS support, research, treatment, and education for patients, caregivers, physicians, nurses and other health care providers. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.

• Provides disease information, insurance information and publications

• Offers patient advocacy groups, research funding, and professional educational initiatives

• Referrals to MDS Centers of Excellence and clinical trials

• Conducts international symposia.

Union for International Cancer Control (UICC)

Contact: 41 22 809 1811 (Headquarters in Switzerland)
Population served: Cancer organizations, public health and oncology professionals worldwide
Mission:

To unite and support the cancer community to reduce the global cancer burden, to promote greater equity, and to ensure that cancer control continues to be a priority in the world health and development agenda.

• UICC is a membership organization consisting of 1188 members, 172 countries, and 58 partners.  Member organizations work in cooperation as expert groups and task forces
• Convenes international events; offers fellowships, training courses, and master classes; advocates for cancer prevention and equitable access to care.