Looking for a place to connect with others whose lives are affected by the same cancer? Wish you could keep up with the latest news and research and want some support?
Sign up for LLS Community -- The Leukemia & Lymphoma Society’s new social network that provides education and support for patients, caregivers, and supporters.
The newly launched online site has the familiar look and feel of modern social media sites, but offers more of an extended conversation and a wider sense of community. You just set up a free account, fill out a profile about your diagnosis and treatment, and start watching your home page feed to see what people are talking about.
You’ll find disease-specific information, cutting-edge updates, news articles and blogs. LLS field and information specialists post items that patients and caregivers would want to know about, and suggest resources. Articles and posts can be searched by topic and user names can be clicked to access whatever information they have chosen to share.
You can join groups focused on everything from a specific disease and advocacy to survivorship and fertility. Write a comment to the full community or group, or make “friends” and start conversations with individual users.
LLS Community also asks patients and caregivers questions about themselves, their experiences and opinions. You can choose to answer all, some or none of these questions. The information is stored securely and used to evaluate the need for new programs, resources, policies and research. The information may also be used to provide you with personalized information specific to your stage and treatment, options for clinical trials, or information about survivorship. You can adjust your privacy settings, and LLS Community never shares information to external organizations for marketing purposes.
LLS Community was developed in memory of Michael Garil, who was diagnosed with acute lymphoblastic leukemia in 1974, at the age of 7. An experimental bone marrow transplant cured his leukemia but the trauma of the transplant combined with years of chemotherapy and radiation ultimately led to his death at the age of 39.
During his life, Michael shared his experiences with many in the hope that others could be spared the same devastating side effects of treatment. To continue what Michael started, his parents Ethel and LLS Board Member Bernard Garil generously supported the creation of LLS Community.
The more we share, the more we can learn and drive change.
Visit LLS Community and register today.